In 2019, I heard Dr Federico Balzola speak at a medical conference. I had been testing zonulin for years, convinced it held clinical value, but it wasn’t until that talk that I saw just how central it is to understanding gut barrier function. Dr Balzola described zonulin as the key to uncovering hidden gut inflammation…
Fear of Vomiting in PANS and PANDAS: A Body on High Alert
Fear of Vomiting and the Gut and Brain Connection in PANS and PANDAS Some children live in constant watchfulness. A smell, a twist in the stomach, or a memory of someone being sick can trigger panic. Even thinking about food can bring on waves of nausea. They refuse meals, scan faces for signs of illness,…
When Everything Becomes a Trigger: Understanding Extreme Reactivity in PANDAS, PANS, and Autism
Some children seem to live in a world made of tripwires. One day they can eat something without a problem, and the next, that same food sends their system into chaos. A new supplement, a mild environmental change, even a small worry about reacting can trigger a storm of symptoms. Parents describe feeling as if…
PANDAS and PANS: The Overlooked Link Between Infection, Immunity, and Behaviour
Awareness Week Feature Across countless families, the same story repeats itself. A child once thriving begins to change – anxiety creeps in, rituals emerge, tics appear, and eating becomes restricted. The changes may come after a throat infection, a viral illness, mould exposure, or even a physical or emotional trauma. Sometimes the shift is sudden,…
When One Amino Acid Holds Your Child’s Brain Hostage
Imagine your child changing overnight after something as ordinary as an infection. One week they are laughing and sleeping, the next they are terrified, raging, and unable to rest. Parents of children with autism or PANS know this cycle too well. Crashes like these can have many triggers – immune flare, inflammation, gut issues, genetics.…
RFK’s Autism Announcement: Folate and Paracetamol Explained for Parents
Since RFK’s announcement yesterday, hundreds of families have reached out asking what this means. This is significant because for the first time in decades, the promise is to investigate autism without blind spots. For too long, research has been funnelled into politically safe corners while families live with realities that don’t fit the script: seizures,…
Can IVIG Reset the Immune System in PANS and Autism?
Imagine your child suddenly stops eating. Not a fussy phase. Not skipping a meal. Overnight, food disappears. Add rituals, regression, or crushing anxiety – most doctors will call it anxiety, depression, or autism. Few will recognise PANS or PANDAS, though that is exactly what it is. Some children also carry an autism diagnosis. Two labels,…
Thyroid, SIBO, and Kids with PANS and Autism: The Link Nobody Talks About
Some kids with PANS, PANDAS, or autism look “gut sick” no matter what you do. Bloating that never shifts. Constipation that drags on. Energy crashes. Food refusal. OCD and mood swings out of nowhere. Often, the thyroid is hiding in the background. Low-functioning thyroid, even when blood tests look “normal”, can quietly stall the gut…
OCD in PANDAS: Symptom or Habit?
10,000 Followers and Your Top Questions This week we reached a milestone – 10,000 followers on Facebook. To celebrate, I asked you to send in the questions you most want answered about PANS and PANDAS. The response was overwhelming. So many thoughtful, heartfelt questions came in from parents navigating these complex conditions every day. Over…
Back-to-School Immune Survival Guide for Kids with PANDAS, PANS, and Autism
If you have a child with PANDAS, PANS, or on the autism spectrum, you’ll know how September feels. The school bell rings, routines shift overnight, germs multiply, and stress levels rise. For some children, this change doesn’t just cause tiredness or the odd cold. It can tip the immune system into chaos – flare-ups of…
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